Thursday, 19 April 2018
My Reality
Adrenoleukodystrophy is a term I have become familiar with this past year, the diagnosis of this disease, specifically the adult version AMN, took so long because of its rarity. My body does not create a protein that breaks down long chain fatty acids and because of the build up, the insulation of my nervous system is being eaten away. What this means for me is a constant pain and a lack of most sensation in my legs, causing difficulties walking. At the moment my condition is stable, so far my MRI scans have shown the disease isn't affecting my brain but now I will require frequent scans for observation. There is no cure for this disease and the only treatment stops progression in the brain is bone marrow transplant that will require a reset of my immune system.
Even though there is no cure, I have been accepting and undertaking any recommendations that the various healthcare practitioners have presented. During my first physio appointment the head of spasticity suggested leg braces to improve my gait. By chance, there was an opening with orthotics and I was fitted that day. Now that I have paired these braces with appropriate shoes, I can almost walk like I used to. I've also started a regime of medication to help me get to some form a regular function, starting at low dosages to encourage a healthy use.
One of the common remarks about my condition is how well I am physically working through it. Each of the specialists I see is surprised with what I am able to do despite having an ailment that could result in me requiring a wheelchair for the rest of my life. Kung fu has been my framework for movement for so long that despite my nerves being damaged there is still muscle memory that allows me to ground and center myself, there is still that ability to tell my legs to move. Without having a system that I have been building and refining the base of for most of my life, I do not know if I would be able to handle having the rest of my abilities crumble. I think it's that thought of probable restriction that drives me to maintain what I have for as long as I can.
I am thankful that I have cultivated ever growing and close friendships, have been apart of teams that have shown absolute support, and have a family that has always been there from the literal start as well as the members that have joined along the way. Without this framework I wouldn't have the joy filled and secure life that is overcoming a terrible and unforeseen uncertainty. I am currently waiting for a donor match to be found. Once a match is found I will begin the rigorous processes of chemotherapy and transplant, but I know that with my safety net I will be able to get through the rough times ahead.
Sunday, 15 May 2016
Path of the Jianke
I'll start off with an update since I have fallen far far FAR behind on my journaling. I am now certified in in first aid thanks to a pair of amazing instructors and feel both impowered by the knowledge I gained over the two Sundays, but also more cautious about what situations I may face. I also finally have an appointment with a neurologist in mid June, which I have been waiting for almost two years on.
This weekend I missed the Pandamonium to attend a two day seminar on traditional Chinese swordsmanship. Although it saddens me to miss one of the most important days at Silent River, I learned many new skills and made new connections with people from many different martial arts.
The seminar was hosted at the Fighting Arts Collective in Toronto, an amazing facility that houses schools of Wing Chun, HEMA, aerial gymnastics, and many other disciplines. The days were filled with drills, discussion about the history and future Jian Fa (sword method), as well as many quips about the socioeconomic climate of North America.
Although we were supposed to learn both the jian and miaodao (two handed saber), the time was spent only on the former with a few miaodao techniques demonstrated without drilling. I also had the chance to participate in a knife throwing seminar after the first day, but declined so I had time to work on my reps.
Tomorrow I'm leaving for DC and am looking forward to all the sights and museums. I was hoping to make a trip to Baltimore to visit a smithy that creates amazing pieces of art but found out through Scott Rodell that they are in the middle of a shoot and aren't even allowing clients to pickup their orders. Although it's a bit of a disappointment, I know that my trip will still be full of adventure and excitement.
Monday, 18 April 2016
Exhaustion
Last week ended in complete exhaustion. Going from next to no class participation to going to the kwoon five days (in a good week) has been a hard but necessary change. Each week I have been trying to push my physical and mental limits bit by bit, but I tend to find myself at my limits by Friday. Two days of rest a week have been more common than I would like, I hope that soon these extended rests won't remain in my training schedule.
Monday, 11 April 2016
Bad Habits
What led my downfall in my last year in the I Ho Chuan was inconsistency. This bad habit filled my last two weeks. My numbers are far behind and I have put more pressure on myself because of my inactivity.
Although numbers were lacking, I feel I made strides in understanding my techniques and movement. Last sihing class really hammered the idea of controlled movement, and I found myself in a better place with my centering than I thought I was. This week will be better, in all aspects, because I know that consistency is the only way that I will succeed this year.
Monday, 28 March 2016
The Current State
Monday, 21 March 2016
Two Handedness and the Center Line
I feel that on Mondays I am more lucid, so I'll be moving my weekly journal posts.
My hand form for the year is Hung, the reasons for choosing this form are many. It helps train consistency of stances, something I have been lacking in my training. It also only has two stances, the horse and open-x, the two stances I need the most improvement in. The last reason, but one that can be found in every form, is two handedness.
On Thursday I forgot my sword at home, I only worked on Hung during I Ho Chuan and made a major breakthrough. The transition between the first and second part of the form requires fluidity with strength in one's stance. By focusing on my two handedness, I found the transition flow naturally from horse, to open-x, than back to horse.
On the weekend I found myself apathetic again. The wear off training leaves me wanting to do nothing on my weekends, but I'm try to work on this. I believe the largest contributor to this dilemma is the constant ache my muscles and joints are in, but that should only be from the hard work that my body has not experienced in months prior and will lessen as I improve.
I'm am looking forward to seeing each team members 1.0 of their form. We have a lot of great skill and knowledge on this team and am sure that Thursday will really help invigorate everyone.
Monday, 14 March 2016
The First Wall
I am still in a lot of pain this morning and found myself asking to work a half day, and took the time to stretch out and do my chi gung, with another scheduled for the end of the day. This evening I'm picking up my mom from the airport after her month long journey in India. I bet she will have many stories that she will be sharing with me, but I'm glad that she will be home.
Sunday, 6 March 2016
Starting the Incline
On Saturday open training was packed with people and weapons. I spent a while working on my articulation and flow with staff work and when I switched to my sword I was able to find another block to add to my form. The last 15 minutes of mat time had a few pylon marked rings for sparring appear, and I was able to get my first 3 rounds of sparring for the year. I'm looking forward to many more rounds with Sifu Lindstrom so I can work on the holes in my guard.
The engagement at the meeting was great to see. I am really looking forward to all the demos and dances as this team seems like it will pull of one of, if not the best year of the I Ho Chuan yet. At the meeting I mentioned that I am going to a traditional Chinese swordsmanship seminar in Toronto during May. I will be learning techniques with the jian (one handed straight sword) and the miaodao (two handed saber) and hope to share all of the knowledge I bring back. I will be gone from May 12th to the 20th and because of this will be unable to attend Pandemonium, but I've already started planning on how I will still contribute to this very important event.
Sunday, 28 February 2016
Working through the Five Animals
Before the banquet last weekend I was lucky enough to have my poses critiqued by Sifu M. Beckett, and was surprised that I had retained most of the basics and was shown the beginning of the more advanced techniques in the poses. Each day I'm finding my stances deepen and my flow into the poses becomes smoother. I look forward to having my poses looked at again, and hope that the changes I've made to my technique are improving my form.
Admittedly I missed my second day, but was I just to accept that I failed my requirement and quit? The I Ho Chuan has a no quitting policy, so I will just have to do two extra days going into the year of the Rooster.
Sunday, 21 February 2016
From the Sheep to the Monkey
Seeing the change of four of my fellow students to the four newest black belts of the school was an intense and emotional moment. Seeing what they had accomplished through the years, converging into this traditional accession that happens each year, was the first of many highlights for this year.
Sunday, 14 February 2016
Back On the Path
Watching from the sidelines while the Sheep team rehearsed the lion dance and demo was an awe inspiring moment. Seeing the progression, the skill sets each of the members have honed, made me believe that I could attain some measure of "that" this year.
My balance is still suffering but with the active release chiropractic treatment I am seeing noticeable improvement. I don't know if it is a result of the treatment or a change in perception, but I am finding myself able to push myself again. When I started my count of 50,000 push-ups and sit-ups on Monday I was only able to do sets of 10 at a time, but already I've progressed to sets of 20. Many of my numbers are going to be low in the beginning, but I think I have found the right pace to get back too and improve on what my fitness used to be.
Tomorrow I will be taking my mother to the airport to start her month long journey in India. I know she will have an amazing time and my sister will make sure that everything goes right. This month of solitude in my house (except for a cat) I plan on tweaking my schedule even more to optimize it around the I Ho Chuan. I also plan on completing unfinished renovations that were part of my requirements for the year of the Horse, the biggest priority being re-flooring the basement.
I am a Water Monkey that has entered the year of the Fire Monkey, and I will succeed this year.
Monday, 26 January 2015
Where Am I and Where Am I Going?
It's hard not to compare yourself to others. The leaps and bounds of progress my teammates are making is so inspiring but at the same time make me look at my apparent lack of progress. I feel like I do not deserve my teammates but I know that the I Ho Chuan is not about judging others lack of involvement.
I will be returning to the I Ho Chuan for the year of the Monkey. During my year away from the program I will be restructuring and strengthening my foundations. In March I'll be seeing an ENT specialist and am hopeful that I will get the answers I need. I feel that my lack of balance has been the largest hindrance in my training but I know my inactivity is just as much of a liability.
The year of the Sheep will be a new starting point along a trail of milestones, how I proceed will determine the path before me.
Wednesday, 20 August 2014
Another Rut
My health has also been affected by my new routine. I find myself able to fall asleep easier, but I have also been finding myself more exhausted throughout the day. I'm seeing my doctor next Wednesday since there has been no update to my ENT recommendation and the last physician I saw dismissed my high iron levels outright. I hope next week will hold some answers.
Until I am out of this rut I will have to postpone the start of my vlog, but I will try to post a video on my channel each week.
Wednesday, 13 August 2014
Regrouping
Monday, 28 July 2014
My Wakeup Call
Each seminar had it's purpose, and as I went though the hours of work leading to the fitness test I found myself in a better mental state. However once the fitness test started it felt like my world was falling apart. I was so angry at myself for not performing at my best, regardless of what shape my health has been in. I just felt like I should give up on everything. But I couldn't give up, because letting myself doubt take control would only let my friends, my family, down.
Friday, 25 July 2014
What is Happening?
Today I came to the conclusion that my best course of action would be to acquire my test results and go to a night clinic in hopes of getting answers, not more questions. Because of these events I am unsure about my ability to participate in the annual bootcamp tomorrow. It's very hard for me to write this but I am at a point where I am actual scared of my condition.
I'm about to head to Edmonton to pick up my results and will be updating this post as I get new information.
UPDATE: After driving to central Edmonton to pick the results and driving back, I opened the envelope I was given to only find the results for the urine sample. I needed the results from the blood samples to execute my plan and now find myself with no other options until next week. Since my condition is so volatile I won't know if I'm well enough for bootcamp until the morning of. I will be at class tonight and any advice would be greatly appreciated.
Tuesday, 22 July 2014
Training at Home
Monday, 21 July 2014
More Answers, Questions, and Waiting
Friday ended on a good note. Although I felt tired and hungry after two hours of class I was convinced to stay for sanshou since the class was practically empty. I know to have a successful year in the I Ho Chuan I must log 1000 rounds of sparring, but with how my health is affecting my balance and stamina I have been missing out instead of training smartly.
Over the weekend the ideas for my first "real" YouTube video have started to work out. If everything goes to plan I'll be uploading my first videos next week.
Wednesday, 16 July 2014
Last Minute
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Tuesday, 15 July 2014
Another Day
I was able to find an online app that counts the days until February 20th, 2015. This plugged into the formual with my current numbers requires me to perform 160 each day. I've also found that 50 pushups cause a .2% increase or decrease to the number. The last 50 pushups to 15000 will put be at 159.8 pushups a day.
After completing the last 50 pushups to 15,000 I wrote the formula on my board. x represents the current total of repetitions and y represents the number of days until February 20th. I think that's all I can do for today, but tomorrow is another day.
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